When a child requires growth hormone therapy, it impacts the whole family. Parents play a critical role in managing injections, monitoring effects, and helping their child adapt emotionally. Siblings are also affected with worry for their brother or sister and possibly jealousy over the extra attention required. Here's how families can confront the challenges of how to make son taller together.
Parental Roles and Responsibilities
Caring for a child on GH therapy brings added responsibilities for parents including:
- Administering daily GH injections consistently at proper times.
- Ordering and acquiring each month's supply of GH from the pharmacy.
- Monitoring for side effects like headaches, muscle soreness or swelling.
- Ensuring their child makes and keeps all follow up doctor's appointments for testing and evaluation.
- Tracking their child's growth measurements at home between appointments.
- Maintaining diligent recordkeeping of injection times, doses, side effects, growth measurements.
- Communicating frequently with the doctor regarding progress and any concerns.
- Ensuring their child adheres to proper nutrition, sleep habits, and exercise to optimize growth.
- Providing emotional support to their child if they struggle with injections.
- Researching financial assistance options if GH therapy exceeds insurance coverage.
- Educating grandparents, babysitters or others who may help care for their child about GH therapy.
It's a major time and energy commitment managing a child's GH treatment protocol. But parents report the effort is fully worthwhile to help their child reach their growth potential.
Impact on Siblings
Siblings of a child undergoing GH therapy are affected too. Positive impacts include:
- Learning compassion, empathy, and importance of health.
- Gaining maturity and sense of responsibility.
- Bonding through assisting with injections or showing support.
- Appreciation of their own good health.
But there can also be challenging effects like:
- Jealousy over extra attention given the sibling needing GH.
- Anxiety or worry about injections and health of their sibling.
- Resentment over family activities revolving around medical needs.
- Stress if family finances are strained due to GH therapy costs.
Open communication, family counseling, involving siblings in care, and focused one-on-one time for each child helps families overcome difficulties and thrive together.
Child's Experience and Perspective
For children themselves, GH injections and frequent doctor visits become a normal part of life. Parents report most kids adapt amazingly well, taking each day in stride. But they may still grapple internally with:
- Sadness or anger about “being different” and needing shots.
- Frustration over daily injections.
- Embarrassment if getting injections in public.
- Physical side effects like headaches or joint aches.
- Disliking time away from friends for appointments.
- Worry over risks like from anesthesia with testing.
- Self-esteem issues if teased by peers over short stature.
Letting kids openly express their feelings and providing abundant validation and support helps them maintain a positive outlook despite challenges of therapy.
Putting the Family First
While each member plays a role, what matters most is sustaining family bonds and optimism. Shared understanding, teamwork, patience and adapting as a cohesive family makes the GH therapy journey smoother. Maintaining healthy communication, embracing positivity, and celebrating each success ensures growth hormone strengthens the family in every way.